Even though it is not officially over.
On Friday, I took all three girls in to Boston for Emily's 6 month checkup with the neurologist. Driving in was as frightening as usual, but, I did it again and I am proud. Emily put it in to words quite nicely when she said, "Mom, Boston is really cool but it's also very scary."
Anyway, her appointment? Was the BEST EVER. Emily has been seizure free now for 3 1/2 years and also had a normal EEG back in 06, so, the doctor thinks that it is time to think about having her go off of her medication. She has to have an ambulatory EEG which we have scheduled for the end of June. If that comes back clear, and, of course, if she remains seizure free between now and then, we will gradually decrease the Lamictal until it is no more. Just how fantastic is that? Of course, we are trying not to get too excited yet, because we won't really know until the above requirements are met, but even the possibility is exciting. Also? Even though I have never believed that the medicine was the only reason she hasn't had seizures (it's not often that seizures are that well-controlled with medicine for such a long time), it's a little nerve-wracking as well. Obviously, going off of her medicine could mean that she will have a seizure, and of course that will be more likely than if she was still on the medicine. Anyway, all in all, as far as trips to the neurologist go? It was great.
We continued north to visit my sister at her office and grab a key to her house. We spent the night there, ordering pizza, watching movies and finally crashing around 11:30ish. The next day, after much mulling over what we were going to do, we decided to at least go look at the castle (it was kind of crappy weather, although when we were there it wasn't raining).
This would be a really fun place to visit in nicer weather as there was a huge open field to run in, a playground, hiking trails, and bike trails. When we were done here, we took the kids to Fudruckers for lunch, and then to Snipits, where Jack and Emily got haircuts. After dropping my sisters back off to get their cars, the girls and I drove home. We got back here around 4 or so. I made chicken quesadillas for dinner and retired to the office for the evening, watch the Sox kick butt, and went to bed around 11.
Ryun is off bowling with Emily and Katherine right now. Chili is on the menu for tonight's dinner ( cold yucky day seems like the perfect day for chili).
On Friday, I took all three girls in to Boston for Emily's 6 month checkup with the neurologist. Driving in was as frightening as usual, but, I did it again and I am proud. Emily put it in to words quite nicely when she said, "Mom, Boston is really cool but it's also very scary."
Anyway, her appointment? Was the BEST EVER. Emily has been seizure free now for 3 1/2 years and also had a normal EEG back in 06, so, the doctor thinks that it is time to think about having her go off of her medication. She has to have an ambulatory EEG which we have scheduled for the end of June. If that comes back clear, and, of course, if she remains seizure free between now and then, we will gradually decrease the Lamictal until it is no more. Just how fantastic is that? Of course, we are trying not to get too excited yet, because we won't really know until the above requirements are met, but even the possibility is exciting. Also? Even though I have never believed that the medicine was the only reason she hasn't had seizures (it's not often that seizures are that well-controlled with medicine for such a long time), it's a little nerve-wracking as well. Obviously, going off of her medicine could mean that she will have a seizure, and of course that will be more likely than if she was still on the medicine. Anyway, all in all, as far as trips to the neurologist go? It was great.
We continued north to visit my sister at her office and grab a key to her house. We spent the night there, ordering pizza, watching movies and finally crashing around 11:30ish. The next day, after much mulling over what we were going to do, we decided to at least go look at the castle (it was kind of crappy weather, although when we were there it wasn't raining).
This would be a really fun place to visit in nicer weather as there was a huge open field to run in, a playground, hiking trails, and bike trails. When we were done here, we took the kids to Fudruckers for lunch, and then to Snipits, where Jack and Emily got haircuts. After dropping my sisters back off to get their cars, the girls and I drove home. We got back here around 4 or so. I made chicken quesadillas for dinner and retired to the office for the evening, watch the Sox kick butt, and went to bed around 11.Ryun is off bowling with Emily and Katherine right now. Chili is on the menu for tonight's dinner ( cold yucky day seems like the perfect day for chili).
No comments:
Post a Comment