I happened upon your blog when I was googling "BESS" and "hypotonia". I have a 15 1/2-month-old son with both. I've not found very many others who have BESS, let along both enlarged subarachnoid fluid spaces and hypotonia. So my radar tweaked, and I thought it might be nice to get in touch and learn more about how Julia has progressed and developed...
My e-mail address is as follows, but without the extra spaces... acjones @ mail.utexas.edu
1 comment:
Hi Sharon,
I happened upon your blog when I was googling "BESS" and "hypotonia". I have a 15 1/2-month-old son with both. I've not found very many others who have BESS, let along both enlarged subarachnoid fluid spaces and hypotonia. So my radar tweaked, and I thought it might be nice to get in touch and learn more about how Julia has progressed and developed...
My e-mail address is as follows, but without the extra spaces... acjones @ mail.utexas.edu
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